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I've been home from the hospital for 45 days today I just realized, and I somehow managed to not blog once this whole time!  I feel terrible, and I hope I haven't worried anyone!  But I've been very busy recovering and living my life.  A novel thi Share

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© Novel Patient for Novel Patient, 2010. | Permalink | 7 comments | Add to del.icio.us
Post tags: ARGFest, Baptized, blessing, blog, Busy, caregiver, Christianity, Chronic, Chronic Illness, Church, church of jesus christ, church of jesus christ of latter day saints, clear liquids, Conference, energy, feeding tube, games, hope, hospital, illness, jesus christ of latter day saints, Latter Day Saints, LDS, life, living my life, pain, patient, picc line, Religion and Spirituality, walk, walker, WALKING

I’ve been home from the hospital for 45 days today I just realized, and I somehow managed to not blog once this whole time!  I feel terrible, and I hope I haven’t worried anyone!  But I’ve been very busy recovering and living my life.  A novel thing!

I’ve made tremendous progress the last 45 days!  I’ve gone from having a feeding tube to clear liquids to solids to totally normal food.  I started out practically confined to bed, but now I’ve been going out and walking around with my walker again.  I even got my PICC line out last week!  Things are looking up!

And since I’ve been feeling so much better, I’ve been able to enjoy a social life again for the first time in a long time.  It can be really hard to make friends when you debilitated with a chronic illness.  I’ve had very little to no social life for years.  Partly due to pain and lack of energy but also due to lack of friends.  But when I was Baptized back in March into The Church of Jesus Christ of Latter Day Saints, little did I know that I would suddenly find myself with as much social life as I had the energy to keep up with.  It’s been a great blessing!

In fact, I’m feeling so much better that I’m actually leaving to go out of town on Wednesday to ARGFest – a conference for the kind of online games I develop and play.  I will be going for 5 days, and I will be taking my caregiver with me to help me out.  I am super excited and thankful that I am well enough to go!

Now that’s what I call progress!

Recent Comments:

• NovelPatient commented on The Unexpected I'll check it out thanks! Hope all is well with you!
• sandie commented on The Unexpected http://www.thecodeoflife.info/pages/The%20Code%20…. I don't know yet if this has any merit. I
• NovelPatient commented on A Place For Him Thanks!
• Alison commented on A Place For Him Not bad for ten minutes! The Dog looks so cute.
• Genko commented on Shattered Trust Hi Lauren: Sorry this has been an additional stress for you. I think it must be almost impossible fo

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© Novel Patient for Novel Patient, 2010. | Permalink | No comment | Add to del.icio.us
Post tags: ARGFest, Baptized, blessing, blog, Busy, caregiver, Christianity, Chronic, Chronic Illness, Church, church of jesus christ, church of jesus christ of latter day saints, clear liquids, Conference, energy, feeding tube, games, hope, hospital, illness, jesus christ of latter day saints, Latter Day Saints, LDS, life, living my life, pain, patient, picc line, Religion and Spirituality, walk, walker, WALKING

Just a quick update to let you know I’m alive.  I’m back in the hospital since Thursday.  My fever came back and my pain got worse, so I was readmitted.

We’ve been trying to figure out the right combination of antibiotics to kick this kidney infection I have.  It just is being really stubborn.

In the meantime, I’ve been dealing with the normal hospital drama.  Allergies and latex intrusions.  Things not happening in a timely fashion or at all.  For instance, I’m fresh out of IV sites.  I’ve had 12 IVs so far.  And number 12 is hurting.  My doctor ordered a PICC line for me yesterday.  I still haven’t received it.  So now I might need to get IV number 13 just to keep getting my IV antibiotics.  IF they can find a place to put IV number 13.

But I’m hanging in there.  Trying to stay postive.  Because what else can I do?  Right now I’m looking forward to take out from my favorite restuarant for dinner.  When your in the hosptial its the small things like that that make a big difference.

I am thankful for internet access and my laptop.  They are keeping me sane.  I am thankful for my own pillow.  I am thankful I’m not even sicker than I am.  I am thankful that I like my doctors.  I am thankful for my mom and sister and dad and caregiver Melissa who have been visiting me so I don’t get too lonely.  And I am especially thankful to all my online friends who keep my company 24/7 and are always there when I need them!

Being in the hosptial sucks.  But it does put things into perspective.Recent Comments:

• sclerogrrl commented on Prednisone Pounds I can definitely relate to the weight gain. I blamed the steroids as well, as I know all too well ab
• Mela commented on Prednisone Pounds Good job Lauren! You’ve been doing great and soon you’ll need to go shopping again. I have no doubts
• David commented on Prednisone Pounds Keep at it, I know you can do it.
• Jasmine commented on Visible You make a great point about our illnesses becoming ‘visible’ through our words/blog. Great post
• NK commented on Taking Femininity Sitting Down Hello! I’m very much impressed with you!! This is so great! please don’t stop doing things for yours

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© Novel Patient for Novel Patient, 2009. | Permalink | 4 comments | Add to del.icio.us
Post tags: antibiotics, caregiver, doctor, Doctors, fever, hospital, kidney infection, latex, perspective, picc line