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		<title>Hospital Update</title>
		<link>http://novelpatient.com/2010/05/05/hospital-update/</link>
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		<pubDate>Thu, 06 May 2010 06:16:31 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
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		<guid isPermaLink="false">http://novelpatient.com/?p=802</guid>
		<description><![CDATA[I'm scared about tomorrow.  Tomorrow I have to get a feeding tube put in.  But let me back up. My liver function has been declining.  But now my GI doctor thinks that my liver problems might be from the oral antibiotic they had me on for my ki Share Related posts:Patience in the Hospital Though [...]


Related posts:<ol><li><a href="http://novelpatient.com/2010/04/29/patience-in-the-hospital/" rel="bookmark" title="Permanent Link: Patience in the Hospital">Patience in the Hospital</a> Though I am a Novel Patient, patience isn't my strong suit.  But patience is what...</li>
<li><a href="http://novelpatient.com/2010/04/07/fear/" rel="bookmark" title="Permanent Link: Fear">Fear</a> Fear and OCD are a bad combination. It's bad enough to have a fearful thought...</li>
<li><a href="http://novelpatient.com/2010/04/13/reporting-from-the-hospital/" rel="bookmark" title="Permanent Link: Reporting from the Hospital">Reporting from the Hospital</a> I hoped for the best, but prepared for the worst, and unfortunately the worst won...</li>
</ol>]]></description>
			<content:encoded><![CDATA[I'm scared about tomorrow.  Tomorrow I have to get a feeding tube put in.  But let me back up.

My liver function has been declining.  But now my GI doctor thinks that my liver problems might be from the oral  antibiotic they had me on for my ki
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<p>Related posts:<ol><li><a href='http://novelpatient.com/2010/04/29/patience-in-the-hospital/' rel='bookmark' title='Permanent Link: Patience in the Hospital'>Patience in the Hospital</a> <small>Though I am a Novel Patient, patience isn't my strong suit.  But patience is what...</small></li>
<li><a href='http://novelpatient.com/2010/04/07/fear/' rel='bookmark' title='Permanent Link: Fear'>Fear</a> <small>Fear and OCD are a bad combination. It's bad enough to have a fearful thought...</small></li>
<li><a href='http://novelpatient.com/2010/04/13/reporting-from-the-hospital/' rel='bookmark' title='Permanent Link: Reporting from the Hospital'>Reporting from the Hospital</a> <small>I hoped for the best, but prepared for the worst, and unfortunately the worst won...</small></li>
</ol></p>]]></content:encoded>
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		<title>Walk By Faith</title>
		<link>http://novelpatient.com/2010/03/09/walk-by-faith/</link>
		<comments>http://novelpatient.com/2010/03/09/walk-by-faith/#comments</comments>
		<pubDate>Wed, 10 Mar 2010 07:04:04 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
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		<guid isPermaLink="false">http://novelpatient.com/?p=559</guid>
		<description><![CDATA[Sunday was a small miracle in the grand scheme of things but not so small to me and a miracle none the less. It was a day that I thought would never happen on many levels. One thing that I thought would never happen was get Baptized, but Sunday was my Baptism. Another thing I thought would never happen was walk at my Baptism, and yet I have gone from not walking from for over a year to no longer using my wheelchair at all in the last three weeks.]]></description>
			<content:encoded><![CDATA[<p><a title="Walk by Faith and Not by Sight by Heart Windows Art, on Flickr" href="http://www.flickr.com/photos/heart_windows_art/2330771133/"><img src="http://novelpatient.com/wp-content/uploads/2010/04/2330771133_84e0a2570e.jpg" alt="Walk by Faith and Not by Sight" width="434" height="325" /></a></p>
<p><span style="color: #800080;">Arise, walk through the land in the length of it and in the  breadth of it; for I will give it unto thee. <strong><a href="http://www.biblegateway.com/passage/?search=Genesis+13:17&amp;version=KJV"><br />
<span style="color: #008080;">Genesis   13:17</span></a></strong></span></p>
<p><span style="color: #008080;"><span style="color: #800080;">He answered  them, He that made me whole, the same said unto me, Take up  thy bed, and  walk.<br />
Then  asked they him, What man is that which  said unto thee, Take up thy bed,  and walk?<br />
And he  that was healed  wist not who it was: for Jesus had conveyed himself  away, a multitude  being in that place.</span><br />
<span style="color: #008080;"><strong>John 5:11-13 (King James Version)</strong></span></span></p>
<p>Sunday was a small miracle in the grand scheme of things but not so small to me and a miracle none the less.  It was a day that I thought would never happen on many levels.  One thing that I thought would never happen was get Baptized, but Sunday was my Baptism.  Another thing I thought would never happen was walk at my Baptism, and yet I have gone from not walking from for over a year to no longer using my wheelchair at all in the last three weeks.</p>
<p>I&#8217;ve been hesitant to talk about my faith here as its a touchy and divisive subject for some, but I figure this is my blog and my faith has become a major part of my life.  I share every other aspect of my life here.  I would be remiss if I left something so close to my heart out.</p>
<p>But my faith wasn&#8217;t always so important to me.  I was raised Reform Jewish, and though I was Bat Mitzvahed, Confirmed, and even assistant taught Religious School at my Temple, I never felt connected spiritually to that faith.  So in my more recent adult years I&#8217;ve been searching for a faith that helped me feel close to God.  For a while For a while I was going to the Universalist Unitarian Church in my area, and though I liked the people and the services very much I still didn&#8217;t feel that closeness to God that I so desperately needed.</p>
<p>So when Melissa invited me to join her for services at her at our local Church of Jesus Christ of Latter Day Saints, I thought it was a long shot but worth at least checking out.   I had already learned a lot about being <a class="zem_slink freebase/en/church_of_jesus_christ_of_latter-day_saints" title="The Church of Jesus Christ of Latter-day Saints" rel="homepage" href="http://www.lds.org">Mormon</a> from her during the time she&#8217;s worked for me, and she had suggested I could get a blessing for my health when I went to church with her.</p>
<p>I was totally unprepared for what I experienced; I felt God for the first time in a very tangible way.  I knew right in that moment that my search had come to an end.  That I had found what I had been searching for.  I decided to start investigating the church and taking my Missionary Discussions that I would need in order to covert.  My blessing also said that through faith I could be healed.  It has been amazing how true that has been.</p>
<p>Over the following week I started feeling better than I had in a long time.  I decided to capitalize on the opportunity and try walking again for the first time in over a year.  I started with just a few steps.  I expected for the recovery process to be slow going.  I expected that it would take months to build up enough strength to walk more than a few steps at a time after over a year of being in a wheelchair or bed full time.  But I have been praying every night and the improvements to my walking have been exponential!  And in just three short weeks, I went from my first steps to ditching my wheelchair completely!</p>
<p>So Sunday I was Baptized, and I walked the whole day &#8211; including down the steps into the Baptismal Font and up again.  My Dad and his girlfriend Wendy were there which made my very happy.  My Mom chose not to attend which was the only sad thing.  It was one of the very best days of my life! And with it I have found such peace and happiness the likes of which I  had never known.  Words cannot describe how grateful I am.  It has been  such a relief and such a comfort.  I truly believe that through faith in Christ I have begun the healing  process!  And I am so thankful to Him for this and for the closeness I  now feel to God.  Through Him I have found what I was looking for and more than I could have ever imagined.
<a href='http://novelpatient.com/wp-content/uploads/2010/03/IMG_1081.jpg' rel='shadowbox[album-559];player=img;' title='With the Missionaries'><img width="150" height="150" src="http://novelpatient.com/wp-content/uploads/2010/03/IMG_1081-150x150.jpg" class="attachment-thumbnail" alt="With the Missionaries who Baptized me" title="With the Missionaries" /></a>
<a href='http://novelpatient.com/wp-content/uploads/2010/03/IMG_1082.jpg' rel='shadowbox[album-559];player=img;' title='My Friends'><img width="150" height="150" src="http://novelpatient.com/wp-content/uploads/2010/03/IMG_1082-150x150.jpg" class="attachment-thumbnail" alt="My friends after the Baptism" title="My Friends" /></a>
<a href='http://novelpatient.com/wp-content/uploads/2010/03/IMG_1083.jpg' rel='shadowbox[album-559];player=img;' title='Melissa and Me'><img width="150" height="150" src="http://novelpatient.com/wp-content/uploads/2010/03/IMG_1083-150x150.jpg" class="attachment-thumbnail" alt="Melissa and me after the Baptism" title="Melissa and Me" /></a>
<a href='http://novelpatient.com/wp-content/uploads/2010/03/IMG_1084.jpg' rel='shadowbox[album-559];player=img;' title='With Dad and Wendy'><img width="150" height="150" src="http://novelpatient.com/wp-content/uploads/2010/03/IMG_1084-150x150.jpg" class="attachment-thumbnail" alt="With Dad and Wendy after the Baptism" title="With Dad and Wendy" /></a>
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<li><a href="http://novelpatient.com/2010/04/25/ladylike-feeling-feminine-in-the-hospital/#comment-5728" rel="bookmark" title="April 26, 2010 at 12:02 am"><span class="rc-commenter">Alison</span> commented on <span class="rc-title">Ladylike: Feeling Feminine in the Hospital</span></a> I&#8217;m sorry you&#8217;re back in the hospital. Way to make the best of it though. Maybe I should invest in s</li>
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<li><a href="http://novelpatient.com/2010/04/16/love-bug/#comment-5692" rel="bookmark" title="April 17, 2010 at 6:36 am"><span class="rc-commenter">Alex</span> commented on <span class="rc-title">Love Bug</span></a> I would point out that whilst you think you may be getting ahead of yourself, from a logical standpo</li>
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		<title>Walking: The Power of Positivity and Prayer</title>
		<link>http://novelpatient.com/2010/02/20/walking-the-power-of-positivity-and-prayer/</link>
		<comments>http://novelpatient.com/2010/02/20/walking-the-power-of-positivity-and-prayer/#comments</comments>
		<pubDate>Sat, 20 Feb 2010 10:09:33 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
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		<category><![CDATA[Positivity]]></category>
		<category><![CDATA[Prednisone]]></category>
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		<guid isPermaLink="false">http://novelpatient.com/?p=551</guid>
		<description><![CDATA[Today I walked ten whole feet!!!  It was only my second time walking in over a year!
It is something that for a long time I was afraid to even pray for.  But with a lot of prayer recently, I&#8217;ve come to realize that with a lot of faith in both myself and in God, anything [...]]]></description>
			<content:encoded><![CDATA[<p style="text-align: left;">Today I walked ten whole feet!!!  It was only my second time walking in over a year!<a href="http://novelpatient.com/wp-content/uploads/2010/03/IMG_1050.jpg" rel="shadowbox[post-551];player=img;"><img class="aligncenter size-full wp-image-552" title="IMG_1050" src="http://novelpatient.com/wp-content/uploads/2010/03/IMG_1050.jpg" alt="" width="425" height="567" align="center" /></a></p>
<p style="text-align: left;">It is something that for a long time I was afraid to even pray for.  But with a lot of prayer recently, I&#8217;ve come to realize that with a lot of faith in both myself and in God, anything is possible.</p>
<p><a title="Roll, Handicapped Person, Roll! by Giant Ginkgo, on Flickr" href="http://www.flickr.com/photos/giantginkgo/58977771/"><img src="http://novelpatient.com/wp-content/uploads/2010/03/58977771_2141d08773.jpg" alt="Roll, Handicapped Person, Roll!" width="192" height="192" align="left" /></a></p>
<p style="text-align: left;">It&#8217;s also taken willingness to put up with significant pain.  But reflecting back on how much pain I was in while attempting to even stand a year ago (which is why I was in the wheelchair to begin with &#8211; very severe joint pain), the joint pain is significantly less than it once was.  I&#8217;m not sure what the final factor in the lessening of my joint pain is.  Maybe the Rituxan finally kicked in after all these months.  I just don&#8217;t know.  But I am so thankful that I have the opportunity to try to get up and out of my wheelchair again!  I decided to think that it wouldn&#8217;t hurt as badly as it once did, and so far it hasn&#8217;t!</p>
<p style="text-align: left;">My goal is to walk three days a week &#8211; Monday, Wednesday, Friday &#8211; leaving at least a day inbetween to rest, so I don&#8217;t completely over do it.</p>
<p style="text-align: left;"><a title="Praying Hands by Lucid Nightmare, on Flickr" href="http://www.flickr.com/photos/lucid_nightmare/108164199/"><img src="http://novelpatient.com/wp-content/uploads/2010/03/108164199_5472fc847c.jpg" alt="Praying Hands" width="260" height="250" align="right" /></a>In the meantime, I&#8217;m trying to taper my Prednisone dose very very gradually.  In the recent past, every time I would try to taper the dose my neurological symptoms would flare &#8211; face drooping, increased tremors, numbness, and so on.  And I&#8217;ve been afraid that this would happen this time.  But so far it hasn&#8217;t.  And there are only three differences this time to which I can attribute my success so far.  Tapering insanely slowly, prayer, and the decision to think positivity.  Some combination of the three would be my best guess at the reason.</p>
<p style="text-align: left;">Though for years now I&#8217;ve considered myself a very positive person, it never ceases to amaze me what the power of positive thinking can do.  And now I&#8217;ve added prayer and a faith in God into the mix.  I feel a sense of inner peace I have never known.  And perhaps that is the most healing thing of all.</p>
<p style="text-align: left;">I have a long road ahead of me.  But I plan to take it one step at a time, one day at a time.  That is how I take all of life.  One step at a time.  One day at at time.  With a positive thought in my head and a prayer in my heart.</p>
<p><strong>Recent Comments:</strong>
<ul class="recent-comments">
<li><a href="http://novelpatient.com/2010/04/16/love-bug/#comment-5708" rel="bookmark" title="April 22, 2010 at 7:43 am"><span class="rc-commenter">Renee (aka Shalunya)</span> commented on <span class="rc-title">Love Bug</span></a> When the right one comes along, he will see past the illness into the heart of the woman he&#8217;s fallin</li>
<li><a href="http://novelpatient.com/2010/04/16/love-bug/#comment-5701" rel="bookmark" title="April 19, 2010 at 6:24 am"><span class="rc-commenter">Alison</span> commented on <span class="rc-title">Love Bug</span></a> You pretty much said it all. Even if it doesn&#8217;t work out, I say enjoy your crush! Don&#8217;t wish it away</li>
<li><a href="http://novelpatient.com/2010/04/16/love-bug/#comment-5693" rel="bookmark" title="April 17, 2010 at 5:01 pm"><span class="rc-commenter">Heidi</span> commented on <span class="rc-title">Love Bug</span></a> I honestly believe there is someone out there for everyone. There are plenty of people who will look</li>
<li><a href="http://novelpatient.com/2010/04/16/love-bug/#comment-5692" rel="bookmark" title="April 17, 2010 at 6:36 am"><span class="rc-commenter">Alex</span> commented on <span class="rc-title">Love Bug</span></a> I would point out that whilst you think you may be getting ahead of yourself, from a logical standpo</li>
<li><a href="http://novelpatient.com/2010/04/13/reporting-from-the-hospital/#comment-5678" rel="bookmark" title="April 13, 2010 at 8:54 pm"><span class="rc-commenter">Alison</span> commented on <span class="rc-title">Reporting from the Hospital</span></a> Hurray for going home! Good job on waiting it out. Sorry I haven&#8217;t been in facebook/twitter contact </li>
</ul>
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Post tags: <a href="http://novelpatient.com/tag/faith/" rel="tag">Faith</a>, <a href="http://novelpatient.com/tag/faith-in-god/" rel="tag">faith in god</a>, <a href="http://novelpatient.com/tag/flare/" rel="tag">flare</a>, <a href="http://novelpatient.com/tag/god/" rel="tag">God</a>, <a href="http://novelpatient.com/tag/handicapped/" rel="tag">Handicapped</a>, <a href="http://novelpatient.com/tag/healing/" rel="tag">healing</a>, <a href="http://novelpatient.com/tag/inner-peace/" rel="tag">inner peace</a>, <a href="http://novelpatient.com/tag/joint-pain/" rel="tag">joint pain</a>, <a href="http://novelpatient.com/tag/life/" rel="tag">life</a>, <a href="http://novelpatient.com/tag/long-time/" rel="tag">long time</a>, <a href="http://novelpatient.com/tag/neurological-symptoms/" rel="tag">neurological symptoms</a>, <a href="http://novelpatient.com/tag/numb/" rel="tag">Numb</a>, <a href="http://novelpatient.com/tag/numbness/" rel="tag">numbness</a>, <a href="http://novelpatient.com/tag/opportunity/" rel="tag">opportunity</a>, <a href="http://novelpatient.com/tag/pain/" rel="tag">pain</a>, <a href="http://novelpatient.com/tag/patient/" rel="tag">patient</a>, <a href="http://novelpatient.com/tag/positivity/" rel="tag">Positivity</a>, <a href="http://novelpatient.com/tag/power-of-positive-thinking/" rel="tag">power of positive thinking</a>, <a href="http://novelpatient.com/tag/prednisone/" rel="tag">Prednisone</a>, <a href="http://novelpatient.com/tag/rituxan/" rel="tag">rituxan</a>, <a href="http://novelpatient.com/tag/step-at-a-time/" rel="tag">step at a time</a>, <a href="http://novelpatient.com/tag/symptom/" rel="tag">symptom</a>, <a href="http://novelpatient.com/tag/tremor/" rel="tag">tremor</a>, <a href="http://novelpatient.com/tag/wheelchair/" rel="tag">wheelchair</a>, <a href="http://novelpatient.com/tag/willingness/" rel="tag">willingness</a><br/>
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		<title>On The Mend</title>
		<link>http://novelpatient.com/2009/08/19/on-the-mend/</link>
		<comments>http://novelpatient.com/2009/08/19/on-the-mend/#comments</comments>
		<pubDate>Thu, 20 Aug 2009 04:59:11 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
				<category><![CDATA[Life Issues]]></category>
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		<category><![CDATA[antibiotics]]></category>
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		<guid isPermaLink="false">http://novelpatient.com/?p=280</guid>
		<description><![CDATA[After spending a total of 2 weeks in the hospital, I finally made it home on Friday!  Yay!  I&#8217;ve still been getting IV antibiotics at home twice a day for a total of 10 days.  But it is GOOD to be home.  There&#8217;s nothing like your own bed after the horribly uncomfortable hospital ones.  There&#8217;s [...]]]></description>
			<content:encoded><![CDATA[<p>After spending a total of 2 weeks in the hospital, I finally made it home on Friday!  Yay!  I&#8217;ve still been getting IV antibiotics at home twice a day for a total of 10 days.  But it is GOOD to be home.  There&#8217;s nothing like your own bed after the horribly uncomfortable hospital ones.  There&#8217;s definitely nothing like cuddling with your dog in that said bed.</p>

<a href="http://novelpatient.com/wp-content/gallery/novelpatient/img_0709.jpg" title="Nothing like puppy therapy to help you heal!" class="thickbox" rel="singlepic87" >
	<img class="ngg-singlepic ngg-center" src="http://novelpatient.com/wp-content/gallery/cache/87__320x240_img_0709.jpg" alt="Cuddling with Bailey" title="Cuddling with Bailey" />
</a>

<p>The power was out yesterday and I found myself struggling (sadly) for something to do.  So I painted this picture of a Healing Growth Tree.  Rather symbolic.</p>
<p>
<a href="http://novelpatient.com/wp-content/gallery/novelpatient/healing-tree.jpg" title="Painting while recovering from a double kidney infection." class="thickbox" rel="singlepic86" >
	<img class="ngg-singlepic ngg-center" src="http://novelpatient.com/wp-content/gallery/cache/86__320x240_healing-tree.jpg" alt="Healing Growth Tree" title="Healing Growth Tree" />
</a>
<strong>Recent Comments:</strong>
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<li><a href="http://novelpatient.com/2009/10/03/crooked-smile/#comment-3682" rel="bookmark" title="October 8, 2009 at 4:27 pm"><span class="rc-commenter">J</span> commented on <span class="rc-title">Crooked Smile</span></a> I just wanted to let you know I gave you a couple of blog awards <img src='http://novelpatient.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' />  You can find them at this post: </li>
<li><a href="http://novelpatient.com/2009/10/03/crooked-smile/#comment-3681" rel="bookmark" title="October 6, 2009 at 12:24 pm"><span class="rc-commenter">J</span> commented on <span class="rc-title">Crooked Smile</span></a> I&#8217;m sorry to hear the inflammation is back. ((Hugs)) Glad you caught it early. I&#8217;m very glad you are</li>
<li><a href="http://novelpatient.com/2009/10/03/crooked-smile/#comment-3678" rel="bookmark" title="October 4, 2009 at 11:49 pm"><span class="rc-commenter">Katgirl</span> commented on <span class="rc-title">Crooked Smile</span></a> AGH! I wonder how long it might have gone on had you not done the daily mugshot? Good catch. But sor</li>
<li><a href="http://novelpatient.com/2009/10/03/crooked-smile/#comment-3677" rel="bookmark" title="October 4, 2009 at 12:21 pm"><span class="rc-commenter">Christy Dena</span> commented on <span class="rc-title">Crooked Smile</span></a> The best forms of happiness and love come from those dark and difficult times. The fact that you smi</li>
<li><a href="http://novelpatient.com/2009/10/03/crooked-smile/#comment-3675" rel="bookmark" title="October 4, 2009 at 1:31 am"><span class="rc-commenter">Denise</span> commented on <span class="rc-title">Crooked Smile</span></a> Crooked smile or not, you are a beautiful person. Inside and out. Keep you head up and hang in there</li>
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